Advancing Research for FOXG1 Syndrome
Due to COVID-19, we will be postponing the event to September 2021.
But we are still looking for volunteers and donations!
Please join our mailing list to stay up to date on event information including what prizes there are to be won!
Our Mission
Our Mission is simple: To find a cure for ALL FOXG1 patients in the world (all ages, all mutations)
FOXG1 Research Foundation strategy is to:
- Understand the impact of FOXG1 dysfunction on brain development and function
- Identify candidate strategies for drug development
- Evaluate the efficacy of candidate therapies
- Invest in both patient-derived induced pluripotent stem cells (iPSC), FOXG1 syndrome mouse models, and other modalities recommended by our Scientific Advisory Board
Then, we will identify and vet therapeutic strategies. Our scientists will seek to understand:
- If restoration of healthy FOXG1 expression can alleviate symptoms of FOXG1 syndrome
- If downstream targets of FOXG1 are good candidates for drug development
- What time points are most effective to initiate treatment
- If a therapy would no longer be effective after a certain age
- If a candidate therapy can be delivered safely
- If a candidate therapy can be modified to treat other common neurologic disorders
- Key symptoms that contribute to quality of life.
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We will share our process and progress and results publicly through this Facebook page and on our website www.FOXG1Research.org
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Donations to the FOXG1 Research Foundation are 501(c)3 tax exempt.

ABOUT FOXG1 RESEARCH FOUNDTAION
Who We Are
Three FOXG1 mothers founded the group in 2017 and a team of global FOXG1 parents and foundations have joined to form the Worldwide FOXG1 Research Foundation. The FOXG1 Research Foundation was formed to accelerate research for FOXG1 syndrome and more. The FOXG1 Research Foundation has a strategic research strategy and has funded multiple critical research projects along the path to a cure. The goal is to get to clinical trials.